Director, Patient Advocacy and Access

Company:

BridgeBio Pharma

Role Title:

Director, Patient Advocacy and Access

Reports To:

Head of Development Operations

Position Summary:

Putting patients first is a core value of BridgeBio. This means engaging patients, families, and caregivers throughout the drug development process to understand their challenges and desires, and adapt our efforts accordingly. The Director of Patient Advocacy and Access will lead Eidos’ and BridgeBio’s outreach to patient advocacy groups to educate and support all subsidiary companies. The position will represent patient communities to stakeholders within Eidos and BridgeBio (Clinical Development, Clinical Operations, Regulatory, Business/Commercial). 

Essential Skills & Functions:

  • Work with Eidos, BridgeBio, and other subsidiary management teams to incorporate patient and family objectives into clinical development plans
  • Develop overall plan for patient educational and recruitment materials on clinical trial programs
  • Contribute to improvement of processes, systems, and tools for Patient Recruitment and retention activities
  • Provide input on clinical documents, including protocols and patient recruitment plans, by advocating the needs and opinions of the global patient community to internal stakeholders 
  • Build and maintain strong global relationships with patients, families, support groups and other stakeholders in therapeutic areas of interest to BridgeBio
  • Ensure uniform messaging on clinical development based on identified patient and patient advocacy group needs.  Ensure that the messages are aligned with the interests of internal stakeholders and are communicated appropriately
  • Manage budgets to support patient events or advisory boards and organizations involved in therapeutic areas of interest to BridgeBio
  • Assist in the coordination of training of regional patient advocates who are willing to assist in the development of advocacy programs or events in their region and who can serve as a resource to BridgeBio
  • Identify and work with specialty service providers of patient recruitment and retention services

Preferred Education and Experience:

  • A minimum of 8 years’ experience in a clinical research or biopharma industry environment 
  • Preferred areas of therapeutic expertise: orphan diseases, cardiology, dermatology, neurology and oncology
  • Bachelor’s degree (or higher) in a relevant life science field
  • Clinical experience (nursing, pharmacy, genetic counseling) is preferred
  • A self-starter who loves to learn and will bring great energy to work 
  • Extensive knowledge of HIPAA and ICH GCP Guidelines
  • Ability to travel up to 30%

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